We went down to "interventional radiology" to have the PEG put in, and the doctor says, "Wouldn't a 'button' be better? He might not pull it out so easily." Well, we'd heard of "buttons" which are larger and flatter, but that would have to be done by a GI doctor, and we couldn't get any on the phone to discuss it, so the PEG went in. James came through it without complaint, smiling big at the recovery nurses and his friends Mark and Joanne. We've been lecturing him about not messing with the protruding tube, and he's usually pretty good at doing what we say, but who knows what he might do in the middle of the night? Pray he won't yank the thing out, and pray that he survives 24 hours without food without too much complaining. Here we just get him eating well again, and now this ... well, it will help build him up. Nasal tube comes out tomorrow.
Mary took this picture a couple of days ago, when James was feeling really good. He is the sweetest boy, and so full of love. He gave me five kisses on the head last night, and it almost made me cry. (James allows his parents to kiss him only on the hair, so that's what he does to us as well.) Building him up will be a long process, but maybe he can come home again for a while after this. B
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