I don't know what to say about the rest of James. He is loved and safe and cozy, but he is losing ground slowly. He sleeps most of the day, and even when his eyes are open, he is not necessarily attentive. We don't know if he is having low-grade seizures a lot, but we cannot always get his attention. He talks very little - only nods if he has to, but of course he will still refuse coffee vocally. (That's our running joke with him.) A big smile from him is like a reward and always celebrated. He's weak, less able to help with transfers from bed to chair, etc., mostly does not support his head. He's not eating much, but the tube and liquid nutrition keep him healthy that way.
Viewed from his perspective, the minutes he is awake, spaced out through the day, are with people who love him and keep him clean and safe. He nods "yes" if we ask if he is happy. You or I would not find that a very satisfactory life, but he is content. We don't know how to pray for him anymore; mostly we pray that we will hold up and give him what he needs. B
