I am shocked to see that it has been so long since I updated this page. On the Monday before Thanksgiving, we took James to the hospital because he was having seizures AND vomiting. Mary and he spent 48 hours in the emergency room - half the emergency department was being remodeled because of a broken water pipe, besides they don't have any spare staff at any time -then he was taken by ambulance to a hospital in San Ramon, about half the distance to our house and not a part of our HMO. There James continued to seize and vomit and slowly get better for two weeks. Last Saturday (December 1) he went to a rehab center about 13 miles from our house.
James has been having physical therapy and getting stronger. He also has been eating double meals and getting tube feedings at night. Today he had one generalized seizure that was stopped with Ativan. He is limp, but was pretty chipper on the phone. I'll go to see him tonight.
Mary has been forced to limit her time at the facility, since they don't allow people to camp out in the room. I think this has been good for her and for James - once, when neither of us was there to feed him dinner, James volunteered to feed himself, which just goes to show he can do more for himself if he has the opportunity.
I don't know how long he'll be where he is, but I think he is on an upper trajectory now. That alone is reason for thanks. Keep praying, and pray for his parents, who are exhausted and on edge. I am particularly pathetic. Love to all, B
Friday, December 7, 2007
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