11/07/07 - very bad day

James was dropped off mistakenly yesterday at our house (we had planned to take him on Sunday and keep him all week), but we had a very nice day with him. At about six this morning he started to have many, many generalized seizures. Mary ended up giving him 6 mg of Ativan in all, and the seizures stopped. He has been very doped up, feverish (could be the seizures or something else), and very slow to respond. About 5.00 pm, Mary was ready to take him to the ER, but I talked her into waiting a little longer and he got better. He is still very sluggish and has had a very bad day, but his fever is down, and I just heard him talking a little bit. (I was right i was right i was right i was rightiwasrightiwasrightiwas RIGHT. I'll say it to myself because I will not likely hear it from anyone else.)

Even more than usual I ask for your prayers. Mary and I are both exhausted and feel incapable of handling all of this. The sad thing is that no one is equipped to do any better. The ER would just monitor him; a medical-based group home would not take him because his condition is unstable; the staff at his house does pretty well, but not if he is having this much trouble. Has God produced or allowed an impossible situation? I think not, but it's looking that way at this moment.

We have been blessed by some dear friends and colleagues at Mary's school, who have provided some wonderful food for us. If you are one of those, this has been a star in your crown. Tonight I made quite a bit of food - I ate a lot, Mary ate some, Michael ate nothing. James got a can through his tube - all he can handle right now.

Off to bed. Love you all of you - keep praying. B

11/10/07 - not really worse, but ...

Not really better. It is a real balancing act to get all meds in him, along with anti-nausea stuff, and get him to hold down his food. Friday night was fine, but Saturday afternoon James lost his lunch. Mary is taking a leave of absence from school - she finally wore down to nothin' (like me). Pray that we will have the energy to do what we must.