I guess "stable" is the word of the day lately. James has not gotten worse in any way, and in some ways he is getting better, a little, very slowly. Last Friday Michael walked him in from the car, and that has not happened in months. James is starting to show more interest in food and even going to the grocery store. Last Friday he was worried about "Doritos in the red bag" and "blueberry muffins". He would mention every ten minutes or so that we needed to go and get them, and he wanted to go when the time came. He wore himself out on Sunny D recently, so we have a whole case here.
I am grateful to you for your prayers and support. James is still cheery and loving. He has little rashes and infections that require trips to the doctor. The last time we went for a feeding tube replacement, they gave us an extra, and one of the caregivers can replace it if necessary. There are many small annoyances, but the good news is that James is well-nourished, eating "recreationally", comfortable in the new wheelchair (green again - his favorite color these days), and social. I'll try to update again soon. B
