After his three weeks of rehab, James was doing much, much better. Since then he has been eating a pureed diet and getting liquid feedings through his tube at night. He is very close to being back to what we consider his "baseline" - gained back weight, looking more muscled and less skeletal, putting together jigsaw puzzles, laughing and talking, calling people on his cell phones. I am grateful to God and all of you who have prayed so hard for him.
Last Friday, we had a minor setback, but the end result was an improvement. James's G-tube was leaking, and there was some blood in the area. Mary took him to the ER, where they replaced it with a much better tube - better anchored in the stomach and on his chest, clear instead of opaque, snap-on lid that will take longer to wear out. (Gross? Well, ...)
James has only had a few seizure episodes, and they were stopped without any hospitalization. One hospital day for 2008 (ER), 180 for 2007.
I am starting not to be mad at God. I know that I may never know why all of this happened, but I am choosing to look ahead and look forward to more time with my little love bucket. I determined a long time ago that all James had to do was love his dad, and he has done that magnificently.
Thanks again to all of you. B
